Ovo su organizacije i grupe potpore za oboljele od Fabryjeve bolesti.

Fabry International Network

– Fabry Internacionalna Mreža

Primarni cilj organizacije Fabry International Network (FIN) je olakšati suradnju među organizacijama bolesnika radi pružanja potpore osobama s Fabryjevom bolešću. To nastoji postići prvenstveno omogućavanjem komunikacije, promicanjem dobre prakse i djelovanjem kao nezavisni forum za udruge koje se bave Fabryjevom bolešću.

Posjetite stranicu FabryNetwork.org

Play Video
Pogledajte kratak video o učincima Fabryjeve bolesti na srce i bubrege.
Fabry disease diagnosis is often delayed due to the lack of specificity in symptoms. Average onset of diagnosis is 13.7 years in men and 16.3 years in women
Fabry disease hereditary and inheritance infographic. Learn about the genetic factors.
View the signs and symptoms of Fabry disease and their multi-systemic effects
Ako mislite da biste mogli imati Fabryjevu bolest, ispišite ovaj vodič za razgovor sa svojim liječnikom.
Fabry disease hereditary and inheritance infographic. Learn about the genetic factors.
Fabry disease is managed through symptom control and effective therapies
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This leaflet aims to answer some of the questions you may have about the causes, inheritance and treatment of Fabry disease.